This beautiful, short video will give you a better understanding of Phelan-McDermid Syndrome and the strength, love and perseverance of the families raising a child born with this rare condition.
The Phelan-McDermid Syndrome Foundation is excited to announce that we have chosen Dallas, Texas, as the location for our 2018 International Conference and McPosium. In just over a year, we’ll be welcoming families, researchers and supporters to The Big D. We’re can’t wait to get there and we’re confident you’ll feel the same way. It’s a new city for our families where you’ll make new memories and new friends.
The purpose of this registry is to consolidate information from individuals with Phelan-McDermid Syndrome into a single database, which will be utilized by researchers to understand Phelan-McDermid Syndrome better. Sharing your medical data will make a world of difference.
The Phelan-McDermid Syndrome Foundation is excited to announce the appointment of three new members to its Board of Directors. Geraldine Bliss, Abby Lievense Lagunoff and Joe Sammartino replace Directors Stephanie LeClerc and Brian Stack, whose terms expired.