Our First Ever Giving 22uesday was a Huge Success! We surpassed out goal! In just 24 hours, you helped the Phelan-McDermid Syndrome Foundation raise over $50,000. Your generous donation helps the foundation spur on scientific research in the search for a cure, helps support families and raise much need awareness for an incredibly rare syndrome.
This beautiful, short video will give you a better understanding of Phelan-McDermid Syndrome and the strength, love and perseverance of the families raising a child born with this rare condition.
The Phelan-McDermid Syndrome Foundation is excited to announce that we have chosen Dallas, Texas, as the location for our 2018 International Conference and McPosium. In just over a year, we’ll be welcoming families, researchers and supporters to The Big D. We’re can’t wait to get there and we’re confident you’ll feel the same way. It’s a new city for our families where you’ll make new memories and new friends.
The purpose of this registry is to consolidate information from individuals with Phelan-McDermid Syndrome into a single database, which will be utilized by researchers to understand Phelan-McDermid Syndrome better. Sharing your medical data will make a world of difference.