Watch this video and learn how you can be the one to make a difference.

This beautiful, short video will give you a better understanding of Phelan-McDermid Syndrome and the strength, love and perseverance of the families raising a child born with this rare condition.


2018 International Conference, McPosium will be held in Dallas, Texas

The Phelan-McDermid Syndrome Foundation is excited to announce that we have chosen Dallas, Texas, as the location for our 2018 International Conference and McPosium. In just over a year, we’ll be welcoming families, researchers and supporters to The Big D. We’re can’t wait to get there and we’re confident you’ll feel the same way. It’s a new city for our families where you’ll make new memories and new friends.


Foundation announces 3 new Board members

The Phelan-McDermid Syndrome Foundation is excited to announce the appointment of three new members to its Board of Directors. Geraldine Bliss, Abby Lievense Lagunoff and Joe Sammartino replace Directors Stephanie LeClerc and Brian Stack, whose terms expired.

PMSF | Phelan-McDermid Syndrome Foundation