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Phelan-McDermid Syndrome Foundation announces Blumenthal as Executive Director

By Nick Assendelft, PMSF Vice President

Susan Lomas (pictured above right) will continue role as President of Board of Directors !

We are pleased to announce that Ronni Blumenthal will be joining us as our new Executive Director, effective Jan. 22.

Blumenthal, of Sarasota, was most recently the director of the Healthy Families, Healthy Children and Healthy Fathers program at the Jewish Family and Children’s Services in Sarasota and has worked extensively in the rare disease and disability communities in Florida and New York.

Susan Lomas, the Foundation’s Acting Executive Director, will continue to serve as the President of the Board of Directors and chair of the Global Partners Committee.

“We’re excited to have Ronni join our Foundation,” said Lomas, mother to Sam. “She brings deep experience and a personal knowledge of issues that affect families who deal with rare disease and disabilities every day. Her broad skills will allow her to make an immediate impact in taking our Foundation to the next level.”

“I’m honored to have been given the opportunity to assist this most impressive Foundation as it takes the next steps in its organizational growth,” said Blumenthal. “The accomplishments of the Board and committee members across the globe speak to the commitment and vision of the families who have worked tirelessly to create PMSF.”

Blumenthal will work closely with the Board of Directors and an engaged patient community to carry out the Foundation’s established vision, mission and external supporters around the world. She will build on current initiatives in family support programming; help to expand revenue streams; continue to grow interest in PMS in the medical and scientific communities; strengthen relationships with advocacy groups and legislators, and build organizational capacity.

Blumenthal will also be involved in planning the Foundation’s 11th International Conference and McPosium July 18-22 at the Embassy Suites Dallas DFW Airport North.

At Jewish Family and Children’s Services, Blumenthal oversaw a wraparound services federal grant program for families in Sarasota and Manatee counties. She also has worked with community leaders and parents in Florida on lifespan services for those with autism and other spectrum disorders. Prior to that, she provided training across the country on autism and related topics and has made presentations at state and national conferences. In New York, Blumenthal was the CEO of an agency providing a full spectrum of services and supports for children and adults living with autism, behavioral challenges, and other developmental differences.

Blumenthal has a master’s degree in health sciences from Long Island University.

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