Receiving the news of a diagnosis for your child can be overwhelming. It creates many emotions and fears. You may be negotiating medical care, breaking the news of the diagnosis to family and friends and looking at your child’s future in a different way.
Every family goes through their own unique way of dealing with their child’s initial diagnosis. Some may need time to absorb the information, speak with their support system and gain a level of comfort before they are ready to reach out to formal services and supports. Others are ready from the outset to learn the ins and outs of what this diagnosis may mean for their child and are very anxious to learn as much as they can about PMS.
Always keep in mind that each child/adult with a diagnosis of PMS is unique. Often, however, parents are able to find some similarities as they connect to each other. PMSF is there to help with bridging these connections and provides opportunities to speak with families within your region and worldwide.
There is a biennial conference held. Families often say how beneficial it was to attend the conference, both for the information provided, but also the opportunity to meet others who share this very rare diagnosis.
Whatever your approach is, PMSF will be there for you to offer information and support which best suits your needs at the time. Below are some suggestions that families may find helpful.