Regional Representatives Network

The Phelan-McDermid Syndrome Foundation’s Regional Representatives are key resources for those affected by PMS. Your state’s representative can help families network with each other and provide guidance for accessing information regarding your state’s services medical, therapy, educational and other services. They also are a family’s liaison to the Foundation. All help to organize regional gatherings, which are great opportunities to share advice, stories and strategies as well as build friendships. Regional Representatives can also help you connect with other families close to where you live.

STATEREGIONREPE-MAIL
AlaskaRegion 1 (North)Laryssa Moreheadmorehed@msn.com
IdahoRegion 1 (North)Laryssa Moreheadmorehed@msn.com
MontanaRegion 1 (North)Laryssa Moreheadmorehed@msn.com
OregonRegion 1 (North)Laryssa Moreheadmorehed@msn.com
WashingtonRegion 1 (North)Laryssa Moreheadmorehed@msn.com
WyomingRegion 1 (North)Laryssa Moreheadmorehed@msn.com
CaliforniaRegion 1 (South)Angie Lin Fosterangie.j.lin@gmail.com
HawaiiRegion 1 (South)Angie Lin Fosterangie.j.lin@gmail.com
NevadaRegion 1 (South)Angie Lin Fosterangie.j.lin@gmail.com
IowaRegion 3 (West)Cynthia Schaussschauss@cox.net
MinnesotaRegion 3 (West)Cynthia Schaussschauss@cox.net
NebraskaRegion 3 (West)Cynthia Schaussschauss@cox.net
North DakotaRegion 3 (West)Cynthia Schaussschauss@cox.net
South DakotaRegion 3 (West)Cynthia Schaussschauss@cox.net
WisconsinRegion 3 (West)Cynthia Schaussschauss@cox.net
KansasRegion 3 (North)Kelley Salisbury-Thorson22q13region3@mail.com
ArkansasRegion 3 (North)Kelley Salisbury-Thorson22q13region3@mail.com
MissouriRegion 3 (North)Kelley Salisbury-Thorson22q13region3@mail.com
OklahomaRegion 3 (North)Kelley Salisbury-Thorson22q13region3@mail.com
TexasRegion 3 (South)Kristina Fisherkristinafisher.pmsf@yahoo.com
LouisianaRegion 3 (South)Kristina Fisherkristinafisher.pmsf@yahoo.com
DelawareRegion 4 (South)Jenna Cohen Goldblattjennagoldblatt@gmail.com
MarylandRegion 4 (South)Jenna Cohen Goldblattjennagoldblatt@gmail.com
West VirginaRegion 4 (South)Jenna Cohen Goldblattjennagoldblatt@gmail.com
VirginiaRegion 4 (South)Jenna Cohen Goldblattjennagoldblatt@gmail.com
Washington D.CRegion 4 (South)Jenna Cohen Goldblattjennagoldblatt@gmail.com
VermontRegion 4 (North)Kelsey Guindonkguindon@comcast.net
New HampshireRegion 4 (North)Kelsey Guindonkguindon@comcast.net
Rhode IslandRegion 4 (North)Kelsey Guindonkguindon@comcast.net
ConnecticutRegion 4 (North)Kelsey Guindonkguindon@comcast.net
MassachusettsRegion 4 (North)Kelsey Guindonkguindon@comcast.net
PennsylvaniaRegion 4 (Central)Abi Fiore & Ashley Gabrielregion4central@gmail.com
New YorkRegion 4 (Central)Abi Fiore & Ashley Gabrielregion4central@gmail.com
New JerseyRegion 4 (Central)Abi Fiore & Ashley Gabrielregion4central@gmail.com
TennesseeRegion 5 (North)Shelly Thompsonbrish0519@yahoo.com
North CarolinaRegion 5 (North)Shelly Thompsonbrish0519@yahoo.com
South CarolinaRegion 5 (North)Shelly Thompsonbrish0519@yahoo.com
AlabamaRegion 5 (South)Mandy Alvaradonewchanges15@yahoo.com
FloridaRegion 5 (South)Mandy Alvaradonewchanges15@yahoo.com
GeorgiaRegion 5 (South)Mandy Alvaradonewchanges15@yahoo.com
MississippiRegion 5 (South)Mandy Alvaradonewchanges15@yahoo.com
UtahRegion 3 (West)Megan Highfield-Stewartmsshorty@cox.net
ArizonaRegion 3 (West)Megan Highfield-Stewartmsshorty@cox.net
ColoradoRegion 3 (West)Megan Highfield-Stewartmsshorty@cox.net
New MexicoRegion 3 (West)Megan Highfield-Stewartmsshorty@cox.net
MichiganRegion 9Darla Schaefersmilingdarla@gmail.com
IndianaRegion 9Darla Schaefersmilingdarla@gmail.com
IllinoisRegion 9Darla Schaefersmilingdarla@gmail.com
KentuckyRegion 9Darla Schaefersmilingdarla@gmail.com
OhioRegion 9Darla Schaefersmilingdarla@gmail.com
MaineRegion 4 (North)Kelsey Guindonkguindon@comcast.net
COUNTRY/AREAREGIONREPE-MAIL
Northern IrelandRegion 6Trudy McReatrudymurray@btinternet.com
IrelandRegion 6Trudy McReatrudymurray@btinternet.com
The United KingdomRegion 6Alison Turneralisonjaneturner@hotmail.com
The United KingdomRegion 6Victoria Feddersonvictoriafedderson@gmail.com
The United KingdomRegion 6Kat Pondkat@teampond.co.uk
Canada, AlbertaRegion 7 (West)Jim Colejimcheeser@yahoo.com
Canada, British ColumbiaRegion 7 (West)Jim Colejimcheeser@yahoo.com
Canada, ManitobaRegion 7 (West)Jim Colejimcheeser@yahoo.com
Canada, SaskatchewanRegion 7 (West)Jim Colejimcheeser@yahoo.com
Canada, New BrunswickRegion 7 (East)Stephanie LeClerc/Cindy McPhedronregion7east@pmsf.org
Canada, NewfoundlandRegion 7 (East)Stephanie LeClerc/Cindy McPhedronregion7east@pmsf.org
Canada, Nova ScotiaRegion 7 (East)Stephanie LeClerc/Cindy McPhedronregion7east@pmsf.org
Canada, OntarioRegion 7 (East)Stephanie LeClerc/Cindy McPhedronregion7east@pmsf.org
Canada, Prince Edward IslandRegion 7 (East)Stephanie LeClerc/Cindy McPhedronregion7east@pmsf.org
Canada, QuebecRegion 7 (East)Stephanie LeClerc/Cindy McPhedronregion7east@pmsf.org
AustraliaRegion 8Megan Toolemegan.toole@hotmail.com.au
New CaledoniaRegion 8Megan Toolemegan.toole@hotmail.com.au
New ZealandRegion 8Megan Toolemegan.toole@hotmail.com.au
IndiaRegion 8Megan Toolemegan.toole@hotmail.com.au
AustraliaRegion 8Rebecca Salisburybecksalis@hotmail.com
New CaledoniaRegion 8Rebecca Salisburybecksalis@hotmail.com
New ZealandRegion 8Rebecca Salisburybecksalis@hotmail.com
IndiaRegion 8Rebecca Salisburybecksalis@hotmail.com
MexicoRegion 10Alejandra Mendozaaleja_santi06@hotmail.com
South AmericaRegion 11 (South)Ljubitza Karlezilkarlezi@icloud.com
Central AmericaRegion 11 (Central)Francines Reyesfrancines95@hotmail.com
BrazilRegion 11 (East)Claudia Spadoniclaudia.pmsfbrasil@gmail.com
SpainRegion 12 (East)Norma Alhambraalhambraj@yahoo.es
SpainRegion 12 (East)Juan Ramón Rodríguezjuanramonrh@gmail.com
PortugalRegion 12 (West)Ana Domingosdomingos.ana@gmail.com
PortugalRegion 12 (West)Rui Barbosa Guedesrui.barbosaguedes@gmail.com
BelgiumRegion 13Frédérique Meuniernomade86@wanadoo.fr
FranceRegion 13Frédérique Meuniernomade86@wanadoo.fr
GermanyRegion 14Gaby Reimanngaby.reimann@web.de
NetherlandsRegion 14Gaby Reimanngaby.reimann@web.de
ItalyRegion 15Arianna Laghiarianna@generalfishtrade.com
MaltaRegion 15Arianna Laghiarianna@generalfishtrade.com
DenmarkRegion 16Torunn Borgersentrb@markvn10.com
FinlandRegion 16Torunn Borgersentrb@markvn10.com
NorwayRegion 16Torunn Borgersentrb@markvn10.com
SwedenRegion 16Torunn Borgersentrb@markvn10.com
AlbaniaRegion 17Gaby Reimanngaby.reimann@web.de
AustriaRegion 17Gaby Reimanngaby.reimann@web.de
Czech RepublicRegion 17Gaby Reimanngaby.reimann@web.de
BosniaRegion 17Gaby Reimanngaby.reimann@web.de
BulgariaRegion 17Gaby Reimanngaby.reimann@web.de
SlovakiaRegion 17Gaby Reimanngaby.reimann@web.de
CroatiaRegion 17Gaby Reimanngaby.reimann@web.de
HerzegovinaRegion 17Gaby Reimanngaby.reimann@web.de
HungaryRegion 17Gaby Reimanngaby.reimann@web.de
LatviaRegion 17Gaby Reimanngaby.reimann@web.de
MacedoniaRegion 17Gaby Reimanngaby.reimann@web.de
MoldovaRegion 17Gaby Reimanngaby.reimann@web.de
RomaniaRegion 17Gaby Reimanngaby.reimann@web.de
SloveniaRegion 17Gaby Reimanngaby.reimann@web.de
SwitzerlandRegion 17Gaby Reimanngaby.reimann@web.de
MalaysiaRegion 18Nadiah Hanim Abdul Latifnadiahhanim@gmail.com
IndonesiaRegion 18Nadiah Hanim Abdul Latifnadiahhanim@gmail.com
ThailandRegion 18Nadiah Hanim Abdul Latifnadiahhanim@gmail.com
PhilippinesRegion 18Nadiah Hanim Abdul Latifnadiahhanim@gmail.com
BruneiRegion 18Nadiah Hanim Abdul Latifnadiahhanim@gmail.com
SingaporeRegion 18Nadiah Hanim Abdul Latifnadiahhanim@gmail.com
PolandRegion 19Beata Skowronskowronek188@gmail.com
GreeceRegion 20Rodoula Papafingosrodapabe@yahoo.gr
TurkeyRegion 20Rodoula Papafingosrodapabe@yahoo.gr
IsraelRegion 20Irena Shimshelashvilishimshik24@yahoo.com
ChinaRegion 21Tiffany Wutiffany_118@163.com
TaiwanRegion 21Tiffany Wutiffany_118@163.com
PMSF | Phelan-McDermid Syndrome Foundation