As the world-wide population of Phelan-McDermid Syndrome patients continues to grow, international groups have chosen and are encouraged to establish foundations and organizations in their own county. There are different support services, differences in fundraising requirements, so it makes sense to create a strong worldwide network to share knowledge and resources, to collaborate on patient advocacy priorities, research and clinical care practices.
Foundation Global Partners across the globe share membership information, improve record keeping, raise global awareness, improve fundraising and facilitate research advancements. Groups organized in each country can maintain their non-profit status while sharing the benefits of PMSF membership. With PMS communities established in many countries and new groups being formed annually, a global partnership with like-minded organizations and dedicated members will better serve all of our PMSF children and families.
Pictured above, Regional Representatives and Global Partners meet at the 2016 International Conference