International Regional Representatives

The Phelan-McDermid Syndrome Foundation’s Regional Representatives are key resources for those affected by PMS. Your country’s representative can help families network with each other and provide guidance for accessing information regarding your country’s medical, therapy, educational and other services. Regional Reps are also your family’s liaison to the Foundation.

Regions are encouraged to organize in-person meetings, which are a great opportunity to share advice, stories and strategies as well as build friendships. Regional Representatives can also help you connect with other families close to where you live.

Northern IrelandRegion 6Trudy
IrelandRegion 6Trudy
The United KingdomRegion 6Alison
The United KingdomRegion 6Victoria
The United KingdomRegion 6Kat
Canada, AlbertaRegion 7 (West)Jim
Canada, British ColumbiaRegion 7 (West)Jim
Canada, ManitobaRegion 7 (West)Jim
Canada, SaskatchewanRegion 7 (West)Jim
Canada, New BrunswickRegion 7 (East)Stephanie LeClerc/Cindy
Canada, NewfoundlandRegion 7 (East)Stephanie LeClerc/Cindy
Canada, Nova ScotiaRegion 7 (East)Stephanie LeClerc/Cindy
Canada, OntarioRegion 7 (East)Stephanie LeClerc/Cindy
Canada, Prince Edward IslandRegion 7 (East)Stephanie LeClerc/Cindy
Canada, QuebecRegion 7 (East)Stephanie LeClerc/Cindy
AustraliaRegion 8Megan
New CaledoniaRegion 8Megan
New ZealandRegion 8Megan
IndiaRegion 8Megan
AustraliaRegion 8Rebecca
New CaledoniaRegion 8Rebecca
New ZealandRegion 8Rebecca
IndiaRegion 8Rebecca
MexicoRegion 10Alejandra
South AmericaRegion 11 (South)Ljubitza
Central AmericaRegion 11 (Central)Francines
BrazilRegion 11 (East)Claudia
SpainRegion 12 (East)Norma
SpainRegion 12 (East)Juan Ramón Rodrí
PortugalRegion 12 (West)Ana
PortugalRegion 12 (West)Rui Barbosa
BelgiumRegion 13Frédérique
FranceRegion 13Frédérique
GermanyRegion 14Gaby
NetherlandsRegion 14Gaby
ItalyRegion 15Arianna
MaltaRegion 15Arianna
DenmarkRegion 16Torunn
FinlandRegion 16Torunn
NorwayRegion 16Torunn
SwedenRegion 16Torunn
AlbaniaRegion 17Gaby
AustriaRegion 17Gaby
Czech RepublicRegion 17Gaby
BosniaRegion 17Gaby
BulgariaRegion 17Gaby
SlovakiaRegion 17Gaby
CroatiaRegion 17Gaby
HerzegovinaRegion 17Gaby
HungaryRegion 17Gaby
LatviaRegion 17Gaby
MacedoniaRegion 17Gaby
MoldovaRegion 17Gaby
RomaniaRegion 17Gaby
SloveniaRegion 17Gaby
SwitzerlandRegion 17Gaby
MalaysiaRegion 18Nadiah Hanim Abdul
IndonesiaRegion 18Nadiah Hanim Abdul
ThailandRegion 18Nadiah Hanim Abdul
PhilippinesRegion 18Nadiah Hanim Abdul
BruneiRegion 18Nadiah Hanim Abdul
SingaporeRegion 18Nadiah Hanim Abdul
PolandRegion 19Beata
GreeceRegion 21Rodoula
TurkeyRegion 21Rodoula
IsraelRegion 21Irena
ChinaRegion 20Tiffany
TaiwanRegion 20Tiffany
Russian FederationRegion 22Ekaterina
AlaskaRegion 1 (North)Laryssa
IdahoRegion 1 (North)Laryssa
MontanaRegion 1 (North)Laryssa
OregonRegion 1 (North)Laryssa
WashingtonRegion 1 (North)Laryssa
WyomingRegion 1 (North)Laryssa
CaliforniaRegion 1 (South)Angie Lin
HawaiiRegion 1 (South)Angie Lin
NevadaRegion 1 (South)Angie Lin
IowaRegion 2Cynthia
MinnesotaRegion 2Cynthia
NebraskaRegion 2Cynthia
North DakotaRegion 2Cynthia
South DakotaRegion 2Cynthia
WisconsinRegion 2Cynthia
KansasRegion 3 (North)Kelley
ArkansasRegion 3 (North)Kelley
MissouriRegion 3 (North)Kelley
OklahomaRegion 3 (North)Kelley
TexasRegion 3 (South)Kristina
LouisianaRegion 3 (South)Kristina
DelawareRegion 4 (South)Jenna Cohen
MarylandRegion 4 (South)Jenna Cohen
West VirginaRegion 4 (South)Jenna Cohen
VirginiaRegion 4 (South)Jenna Cohen
Washington D.CRegion 4 (South)Jenna Cohen
VermontRegion 4 (North)Kelsey
New HampshireRegion 4 (North)Kelsey
Rhode IslandRegion 4 (North)Kelsey
ConnecticutRegion 4 (North)Kelsey
MassachusettsRegion 4 (North)Kelsey
PennsylvaniaRegion 4 (Central)Abi Fiore / Deb
New YorkRegion 4 (Central)Abi Fiore / Deb
New JerseyRegion 4 (Central)Abi Fiore / Deb
TennesseeRegion 5 (North)Shelly
North CarolinaRegion 5 (North)Shelly
South CarolinaRegion 5 (North)Shelly
AlabamaRegion 5 (South)Mandy Alvarado / Michael
FloridaRegion 5 (South)Mandy Alvarado / Michael
GeorgiaRegion 5 (South)Mandy Alvarado / Michael
MississippiRegion 5 (South)Mandy Alvarado / Michael
UtahRegion 3 (West)Courtney Dereen / JoLea
ArizonaRegion 3 (West)Courtney Dereen / JoLea
ColoradoRegion 3 (West)Courtney Dereen / JoLea
New MexicoRegion 3 (West)Courtney Dereen / JoLea
MichiganRegion 9Darla
IndianaRegion 9Darla
IllinoisRegion 9Darla
KentuckyRegion 9Darla
OhioRegion 9Darla
MaineRegion 4 (North)Kelsey
PMSF | Phelan-McDermid Syndrome Foundation