The Phelan-McDermid Syndrome Foundation’s Regional Representatives are key resources for those affected by PMS. Your country’s representative can help families network with each other and provide guidance for accessing information regarding your country’s medical, therapy, educational and other services. Regional Reps are also your family’s liaison to the Foundation.
Regions are encouraged to organize in-person meetings, which are a great opportunity to share advice, stories and strategies as well as build friendships. Regional Representatives can also help you connect with other families close to where you live.