Contact Us

General Inquiries, Donations and Mailing Address

The Phelan-McDermid Syndrome Foundation is based in Venice, Florida. Our office staff works with families, the Board of Directors, researchers and other stakeholders to accomplish our Foundation’s goals. The staff welcomes your questions, comments and suggestions.

If you would like to send a donation by mail, please use the address below.  All donations are acknowledged.  If you made a donation and did not receive an acknowledgment, please contact our Executive Director at


Executive Director:  Ronni Blumenthal

Mailing Address:
Phelan-McDermid Syndrome Foundation
Attn: Ronni Blumenthal
200 Capri Isles Blvd. Suite 7F
Venice, Florida 34292

PMSF Staff Members

Regional Representatives

The Phelan-McDermid Syndrome Foundation’s Regional Representatives are local resources for families. They can help families network with each other and provide guidance for information regarding state medical and therapy services.

+  US Reps

+  International Reps

Website Mangement

If you have issues with website content or functionality, please contact:

Program Director: Diane Linnehan

Usage of Phelan-McDermid Logos and Trademarks

+  View Logo Guidelines

PMSF | Phelan-McDermid Syndrome Foundation