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March 2019

Health DataPalooza Washington Hilton-Megan attending

March 27 - March 28
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Rare on the Road – Boston

March 30

https://raretour.org/?fbclid=IwAR1QCfCzqBpI1Str86aDJ4eyhdFlbKF54v8VHt6Zh1DJAI-FHtj11g90_mM Boston, MA – March 30, 2019

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April 2019

ACMG Meeting in Seattle

Brittany McLarney, PMSF Registry Coordinator will be presenting poster/exhibit at the Shaping the Future of Genetics and Genomics Conference. https://www.acmgmeeting.net/acmg2019/Public/mainhall.aspx

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Gatlinburg Conference (San Antonio) Audrey Thurm presenting a poster

April 3 - April 5
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Webinar: Managing the Chaos: Being Intentional About Your Routine

April 8 @ 12:00 pm - 1:00 pm

Join Brad Thompson, M.A., NCC, LPC-S, for a webinar about managing our busy lives. While taking care of our children has become our number one priority, it's often at the detriment of taking care of ourselves. This webinar will discuss how to manage that growing to-do list, how interruptions impact our thinking, and how to learn the value of stillness even if the moments are brief. This session is for all of the caregivers who struggle to find any time to…

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Ronni & Megan at World Orphan Drug Congress in MD

April 10 - April 12
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May 2019

PMSF Australia GOLF DAY Sydney 

May 15 @ 8:00 am - 5:00 pm

PMSF Australia GOLF DAY Sydney, Australia

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PMSF UK and Ireland Family Day

May 18 @ 10:00 am - 5:00 pm

Our PMSF UK & Ireland Family Day is being held on Saturday 18th May 2019 in North London. Registration will be required and more details will be provided in January 2019 on how you can reserve your place(s). Learn more here: https://www.pmsf.org.uk/pmsf-uk-ireland-family-day-2019/

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Webinar: SCERTS: Practical Strategies for Emotional Regulation

May 19 @ 7:00 pm - 8:00 pm

Join Amy Laurent, Ph.D., OTR/L, a developmental psychologist and a registered pediatric occupational therapist, for a webinar on a brief review of the core social communicative and emotional regulatory developmental challenges at various stages in development (i.e., pre-verbal stages, emerging language stages, and conversational stages). This introduction of regulatory challenges and social communicative difficulties will then be followed by a discussion of the interplay between these areas and their impact on an individual’s social communicative competence. This relationship will be addressed from…

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June 2019

Webinar: SCERTS: Family and School Collaboration

June 30 @ 7:00 pm - 8:00 pm

Join Amy Laurent, Ph.D., OTR/L, a developmental psychologist and a registered pediatric occupational therapist, for the last in a series of three webinars about the SCERTS model. This webinar will focus on collaboration between families and professionals. Practical strategies for and importance of such collaboration will be discussed. Click Here to Register 

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