PMSF International Conference Blog

Tips and Tricks (aka LifeHacks)

By Diane Linnehan, Program Director Tips and Tricks Resource Guide  I am pleased to share our new Tips and Tricks Resource Guide that was assembled by parent, Meghan Howie. Meghan has been gathering ideas, photos and links over the past few months that were shared by our own creative PMS parents and caregivers.  In the Guide, you will find creative solutions [...]

Important Hotel Information – Super 8

By Veronica Frunzi, Conference Committee Co-Chairpersons Important Hotel Room Information  If you have a reservation at the group rate at the Embassy and plan to cancel your reservation, please contact Veronica Frunzi at vfrunzi@att.net PRIOR to canceling your reservation so we can reassign your discounted nightly rate to another PMSF family on the wait list. Rooms available at nearby Super 8 [...]

Session Spotlight – Coping; the good, the bad, the funny

By Kathy Fiscus, parent Self-care is crucial, but more often than not, we just keep going and going, pushing through until we have nothing left. Sometimes helping someone else dealing with a similar situation, or being able to find the humor in a serious situation can have a healing impact. This will be a parent-guided session for parents and caregivers [...]

Registration is OPEN

By Veronica Frunzi, Conference Committee Co-Chairpersons We've made registering for the 2018 PMSF International Conference and Phelan-McPosium in July in Dallas so easy.  REGISTER HERE Here's what you need to know: Adult registration includes admission to conference and McPosium sessions, Family Fun Day on Wednesday, Social Events on W,Th, F, Sa, and a swag bag with conference T-shirt. You can [...]

Important Hotel Information

By Veronica Frunzi, Conference Committee Co-Chairpersons Important Hotel Room Information  Unfortunately, we were not able to obtain additional rooms at the $149 group rate at the Embassy Suites. We were able to secure a limited number of room nights at a premium rate of $189; however, those nightly rates are sold out as they’ve been assigned to families who were on [...]

2018 PMSF International Conference

By Veronica Frunzi, Rachel (Assendelft) Ahlgren, Conference Committee Co-Chairpersons Howdy from the Conference Committee Chairs ! It’s hard to believe that we are just seven months away from our 11th biennial international family conference. The conference will be held July 18-22, 2018 in Dallas Texas at the Embassy Suites DFW-North.  As some of you may remember from early conferences, the [...]

2018 International Conference Update

Room reservations are open now and filling quickly.  Conference registration will open early 2018 by Veronica Frunzi, Board of Directors, Secretary/Conference Co-chair The 2018 International Family Conference ‘United in Hope’ will be held in Dallas, TX: Date: July 18- 22, 2018 Location: Embassy Suites by Hilton DFW Airport North Airport: Dallas-Fort Worth International has easy domestic and international flight connections It [...]

2018 International Conference, McPosium will be held in Dallas, Texas

The Phelan-McDermid Syndrome Foundation is excited to announce that we have chosen Dallas, Texas, as the location for our 2018 International Conference and McPosium. In just over a year, we'll be welcoming families, researchers and supporters to The Big D. We're can't wait to get there and we're confident you'll feel the same way. It's a new city for our [...]

2016 International conference by the numbers

2016 conference by the numbers -- 543: Approximate total attendance. -- 151: Total families that attended. -- 97: Individuals with PMS who attended. -- 87: Siblings of those with PMS. -- 85: Extended family and caregivers. -- 41: Number of children from 27 families who used the child care. -- 26: Families who received PMSF or Kyle’s Angels scholarships. -- [...]

Friend crochets Afghan cuddle for conference raffle

By Kelley Thorson Parent to Kyle An Army retiree and her husband from Dixon, Missouri, has generously donated her talent to benefit the Phelan-McDermid Syndrome Foundation. My friend, Bonnie White, has for years crocheted hats, scarves and blankets and donated them to schools and children in need. She also makes baby Afghans and donates them to families in need. One [...]
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