Contact your Regional Representative:
The Phelan-McDermid Syndrome Foundation’s Regional Representatives are key resources for those affected by PMS. Your state’s representative can help families network with each other and provide guidance for accessing information regarding your state’s services medical, therapy, educational and other services. They also are a family’s liaison to the Foundation. All help to organize regional gatherings, which are great opportunities to share advice, stories and strategies as well as build friendships. Regional Representatives can also help you connect with other families close to where you live.