Webinars

Click below to view the webinars on topics of interest to PMS families.

A Live Walk-through the PMS International Registry

Brittany McLarney, Registry Coordinator, Phelan-McDermid Syndrome Foundation

Sleep Disturbance in PMS

Della Bro, MS, Genetic Counselor, based on work by Dr. Jon Bernstein, et al

Lymphedema

Dana Winrow, PT, CLT-LANA, Certified Lymphedema Specialist,  Lymphedema Association of North America

PMS International Registry

Rebecca Davis Cooke, Registry Coordinator

Organizing Health Records

Jackie Malasky Jacobs, MPH, Family Engagement Specialist

PMSF | Phelan-McDermid Syndrome Foundation