Volunteering for the Phelan-McDermid Syndrome Foundation

We accept volunteers from around the world.  The Phelan-McDermid Syndrome Foundation is based in Venice, Florida. Our office staff works with families, the Board of Directors, researchers and other stakeholders to accomplish our Foundation’s goals.

The foundation is growing quickly and there are new projects and initiatives throughout the year. There are many ways you can volunteer your time and skills to help the foundation achieve its goals to advance research, support families and advocate for legislation and funding.  For example, you can volunteer to participate:

  • as a committee member
  • as-needed on a project basis
  • with family and foundation fundraisers
  • with legislative advocacy and awareness for all families

So, even if you don’t know how you can help, but would like more information, click the link below and you will be contacted to learn more about volunteering. We welcome your questions, comments and suggestions about volunteer opportunities.


Mailing Address:
Phelan-McDermid Syndrome Foundation
Attn: Sue Lomas, President
200 Capri Isles Blvd. Suite 7F
Venice, Florida 34292

PMSF | Phelan-McDermid Syndrome Foundation