GOAL # 5
Tell our story to advocate for partnerships, legislation and funding.
Identify and execute strategies that will be effective in communicating PMSF mission, vision, goals, and values. strategies, and accomplishments to engage stakeholders to help PMSF achieve its mission.
To continue advocacy efforts to recruit and foster champions in congress through meetings with lawmakers and participating in rare disease coalition group advocacy events throughout the year.
2018 Priorities: Branding, coordinated messaging, advocating for access to care, education & therapy, research, rare disease community collaborations.
+ PMSF Advocacy