Advocate for families affected by Phelan-McDermid Syndrome globally and accelerate the search for a cure.
To improve the quality of life of people affected by PMS worldwide by providing family support, advancing research, and raising awareness about Phelan-McDermid syndrome.
The Phelan-McDermid Syndrome Foundation has developed five goals with associated objectives for key strategic initiatives. A project plan is developed for objectives including resource plans, budget, timelines and key performance metrics. Metrics are continuously monitored and reported to the board of directors quarterly to facilitate data driven-decision making. The goals are objectives are: